Chronic, rare, & complex conditions
SC-HEROES: Sickle Cell Health and Education Research on OutcomES
This study will investigate how sickle cell disease affects children and young people’s health and education over time, and how early healthcare experiences are linked to later school absence and educational attainment.
The study is being led by Galyna Ntamack, Dr Rachel Knowles, Prof Pia Hardelid and Dr Amal Rammah (UCL), and Dr Carl Reynolds (NHS Race and Health Observatory), and is funded by a UCL-Birkbeck MRC DTP iCASE PhD Studentship.
Effects of Air Quality on health and human capital outcomes of children
This study will investigate the impact of air pollution from toxic plants on the physical and mental health, and human capital development of children in England.
The study is being led by Dr Ludovica Gazzè, Dr Lorenzo Neri and Dr Titir Bhattacharya and is funded by the Nuffield Foundation.
Education and longer-term health outcomes for childhood cancer survivors
The study will create a longitudinal, population-level database of hospital and education records. We aim to quantify the difference in academic attainment and school support (including Special Educational Needs) up to age 16, and hospitalisations and mortality into adulthood, between childhood cancer survivors and healthy peers.
The study is being led by Dr Selina Nath and Prof Katie Harron, and is funded by CRUK and Children with Cancer.
The Human Capital Cost of Air Pollution
This study will investigate the effect of air pollution on children’s human capital in England following a series of coal power plant closures.
The study is being led by Dr Lucie Gadenne at the Institute for Fiscal Studies.
Childhood outcomes in children with Hirschsprung disease
The study will use ECHILD to explore health and educational outcomes across childhood in children with a rare congenital condition called Hirschsprung disease. We aim to provide families with better information about the challenges that children with this condition might face as they grow up, and to inform development of new treatments.
The study is being led by Prof Katie Harron, Dr Ben Jevans and Dr Conor McCann (UCL) and was funded by NIHR.
Health and education outcomes for children with chronic liver disease
This study aims to evaluate healthcare and educational outcomes (including need for learning support) for children with chronic liver disease, to generate evidence to inform development of guidance on long-term developmental follow-up.
The study is being led by Qing Zhang, Prof Katie Harron (UCL) and Dr Marianne Samyn (King’s College London) and is funded by the NIHR Great Ormond Street Hospital Biomedical Research Centre.
Variation in special educational needs provision for children with Down Syndrome and associations with emergency use of hospital care
This study aims to identify inequalities in the provision of health, education, and social care services for children with Down’s syndrome, and examine how those inequalities affect their long-term health and education outcomes.
This study is led by Julia Shumway and Prof Ruth Gilbert (UCL) and is funded by the NIHR Great Ormond Street Hospital Biomedical Research Centre.
Completed Studies
Educational Outcomes after Paediatric Brain Injuries and the Role of Special Educational Needs Support
This project studied the long-term educational outcomes for children following Acquired Brain Injury (ABI) and how special educational support can improve these outcomes.
The study is completed. It was led by Dr Hope Kent (University of Exeter) and was funded by ADR UK and ESRC.
Understanding the consequences of congenital cytomegalovirus infection (CMV)
This study explored Special Educational Needs and Disability (SEND) provision, attendance and attainment in children with congenital cytomegalovirus infection (CMV).
The study is completed. It was led by Ayana Cant, Dr Heather Bailey and Prof Katie Harron (UCL) and was funded by the Academy of Medical Sciences.