General 4 — ECHILD: Education and Child Health Insights from Linked Data

We’re working with patient, pupil, parent and public engagement groups to understand different views on the use of linked health, education and social care data for research. This includes getting valuable feedback on research plans for ECHILD.

What have we learned?

Explore summaries of our public engagement activities to find out how members of the public have informed our research.

Explore our research to find out what we have learned from the data.

Who have we been working with?

We would like to thank all children, young people, parents, carers and others who have given their time to being involved in our engagement events.

So far, we have worked with:

The Great Ormond Street Hospital for Children NHS Foundation Trust Young People’s Forum (YPF).
GOSH Young Person’s Advisory Group (YPAG) for research
NIHR Great Ormond Street Hospital BRC Young Persons Advisory Group and the BRC Parent and Carer Advisory.
Council for Disabled Children FLARE.
National Children’s Bureau Families Research Advisory Group.
National Children’s Bureau Young Research Advisors.
Scope Research Panel
Up on Downs Hertfordshire
ECHILD Lay Advisory Group
NIHR CPRU Parents Panel
Young Lives vs Cancer charity
The Children and Young peoples cancer association charity
CPRU Young Person Panel
GenerationR Liverpool YPAG
Leaders Unlocked (LU)

How can I contribute?

We want ECHILD to be used to answer questions that children, young people, parents and the public think are important and useful. If you would like to share your personal views on the research we’re doing, or suggest other questions we should look at, please contact the team at: [email protected].